Keep It Together Care

How to use this guide

Prostate Cancer: Diagnosis & First Appointments Pack

This pack helps you keep the numbers, scans and words from a prostate cancer diagnosis in one place, exactly as your team gave them, and take your questions to the next appointment. It doesn't interpret results or compare treatment options.

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On a phone, tablet or computer

Fill it in by typing

  1. Download the PDF from your email or from the download page.
  2. Open it in a PDF app that supports forms, such as Adobe Acrobat Reader (free on computers, phones and tablets).
  3. Tap a box and type. Tick boxes tick with one tap.
  4. Save the file. Your answers stay in your copy; nothing is sent to Keep It Together Care.

On paper

Print it and write by hand

  1. Print it on A4. The rows and boxes are sized for handwriting.
  2. Copy names, dates and numbers exactly as they appear on letters, labels and reports.
  3. Keep it somewhere easy to reach, and take the pages you need to appointments.

Video walkthrough

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A short video showing how to fill in this guide is on its way.

Common questions

Where do I record PSA results?
On "PSA record: record only". Copy each result and the date exactly as given, and who explained it. The pack doesn't say what a number means.
What if I don't understand a term in my letter?
Copy it exactly and add it to your questions. Your clinical nurse specialist is usually a good first person to ask.
Can I use it to compare treatments?
No. "Monitoring and treatment options discussed" records what the team actually said. It doesn't compare options or suggest one.
I typed into it, but my answers had gone when I opened it again. Why?
Some previews, such as a browser tab or an email preview, can't save answers in a form. Download the PDF first, open it in a PDF app that supports forms, such as Adobe Acrobat Reader, then save.
Is anything I write sent anywhere?
No. The PDF doesn't send your answers to Keep It Together Care or to anyone else. They stay in the file on your device, or on your paper copy.

What’s inside

  • Start here: before you read anything else
  • The diagnostic pathway
  • PSA record
  • MRI and biopsy record
  • Diagnosis details, as reported
  • Further scans and tests
  • My specialist team
  • Options discussed
  • Bladder, bowel, sex and fertility
  • Next appointment questions
  • Practical planning
  • Support and next packs

Practical organisation, not medical advice. Your own care team’s advice always comes first. See all free help